ALSTROM SYNDROME UK

Website: http://www.alstrom.org.uk

Activities: Alstrom Syndrome UK provides information, family support and advice for individuals affected, their families, carers and professionals. We work closely with Birmingham Children’s Hospital & Torbay Hospital to support the multi-disciplinary clinics for Alstrom patients. We raise money for research. We endeavour to raise awareness of Alstrom Syndrome. We provide a 24 hour answer-machine help-line.

Areas Covered: Throughout England And Wales

Address: 8 Church Grove,Barnstaple

Email: steve.scoffield@alstrom.org.uk

Phone: 07980122404

Social Media:

• facebook: AlstromsyndromeUK
• twitter: AS_UK