EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE

Activities: Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.

Areas Covered: Throughout England And Wales

Address: 91 OAKENSHAW ROAD,REDDITCH

Email: kosiceax913@blueyonder.co.uk

Phone: 01527457749